Use of a Decision Aid to Help Caregivers Discuss Terminal Disease Status With a Family Member With Cancer: A Randomized Controlled Trial
- Authors
- Yun, Young Ho; Lee, Myung Kyung; Park, Sohee; Lee, Jung Lim; Park, Jeanno; Choi, Youn Seon; Lim, Yeun Keun; Kim, Sam Yong; Jeong, Hyun Sik; Kang, Jung Hun; Oh, Ho-Suk; Park, Ji Chan; Kim, Si-Young; Song, Hong Suk; Ro, Jungsil; Lee, Keun Seok; Heo, Dae Seog; Hong, Young Seon
- Issue Date
- 20-12월-2011
- Publisher
- AMER SOC CLINICAL ONCOLOGY
- Citation
- JOURNAL OF CLINICAL ONCOLOGY, v.29, no.36, pp.4811 - 4819
- Indexed
- SCIE
SCOPUS
- Journal Title
- JOURNAL OF CLINICAL ONCOLOGY
- Volume
- 29
- Number
- 36
- Start Page
- 4811
- End Page
- 4819
- URI
- https://scholar.korea.ac.kr/handle/2021.sw.korea/110895
- DOI
- 10.1200/JCO.2011.35.3870
- ISSN
- 0732-183X
- Abstract
- Purpose We tested whether a decision aid explaining how to discuss the approach of death with a family member with cancer would help family caregivers decide to discuss a terminal prognosis. Patients and Methods We randomly assigned caregivers of terminally ill patients with cancer to a group that received a video and a companion workbook that showed either how they can discuss the prognosis with their patient (experimental arm) or how cancer pain can be controlled (control arm). At baseline and 1 month, we evaluated the decision to discuss terminal prognosis as the primary outcome. At 0, 1, 3, and 6 months, we assessed the caregivers' decisional conflict and satisfaction as secondary outcomes using a Decision Conflict Scale (DCS). Results We found no difference in changes in the decision to discuss terminal prognosis between the two groups. Conflict (P = .003), uncertainty (P = .019), and value clarity (P = .007) subscale scores and total DCS score (P = .008) improved from baseline to 1 month significantly more in the experimental arm than in the control arm. Over 6 months, the significant between-group differences continued for the conflict (P = .031), uncertainty (P = .014), and value clarity (P = .039) subscale scores and total DCS score (P = .040). Conclusion Decision aids can help caregivers, with the aid of trained professionals, to communicate with patients about their terminal illness. J Clin Oncol 29: 4811-4819. (C) 2011 by American Society of Clinical Oncology
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Collections - College of Medicine > Department of Medical Science > 1. Journal Articles
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