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The impact of caregiver's role preference on decisional conflicts and psychiatric distresses in decision making to help caregiver's disclosure of terminal disease status

Authors
Yoo, Shin HyeYun, Young HoKim, Kyoung-NamLee, Jung LimPark, JeannoChoi, Youn SeonLim, Yeun KeunKim, SamyongJeong, Hyun SikKang, Jung HunOh, Ho-SukPark, Ji ChanKim, Si-YoungSong, Hong SukLee, Keun SeokHeo, Dae SeogHong, Young Seon
Issue Date
6월-2018
Publisher
SPRINGER
Keywords
Decision making; Decision aid; Caregiver; Decisional role preference; Cancer; End of life
Citation
QUALITY OF LIFE RESEARCH, v.27, no.6, pp.1571 - 1581
Indexed
SCIE
SSCI
SCOPUS
Journal Title
QUALITY OF LIFE RESEARCH
Volume
27
Number
6
Start Page
1571
End Page
1581
URI
https://scholar.korea.ac.kr/handle/2021.sw.korea/75017
DOI
10.1007/s11136-018-1814-7
ISSN
0962-9343
Abstract
The objective of this study was to investigate the impact of caregivers' role preference in decision making on conflicts and psychiatric distresses. The responses of 406 caregivers of terminal cancer patients enrolled in a trial determining the efficacy of a decision aid focused on the disclosure of terminal disease status were included in this secondary analysis. The outcomes include the change scores of the Decision Conflict Scale (DCS) and depression and anxiety subscales of the Hospital Anxiety and Depression Scale (HADS) at the 1 and 3 months from baseline. The linear mixed model was employed to discover the impact of caregivers' decisional role preference on the outcomes. Of the 406, 137 (33.7%) showed an active role preference and 269 (66.3%) showed a passive role preference. In the post hoc analysis of the adjusted differences of change scores between passive caregivers who received decision aid (passive-decision aid) and active caregivers with decision aid (active-decision aid), non-significant differences were observed in the DCS. However, at the 3-month, the change scores of the HADS depression subscale increased by 4.43 (effect size, 0.71) and those of the HADS anxiety subscale increased by 4.14 (effect size, 0.61) in the passive-decision aid group than in active-decision aid group, showing moderate to large difference. These findings suggest that information might be ethically recommended in a format that is interactive and tailored to how much an individual wishes to be involved in the decision-making process.
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